DSF is actively tracking legislative developments to anticipate any potential impacts on our patient community and to keep our stakeholders well-informed. We need your help to advocate for critical issues and policies that directly impact the Dravet syndrome patient community and others affected by rare diseases. By lending your voice, you can help drive meaningful change, influence decision-makers, and improve the lives of those living with these conditions.

Click on an image below to explore specific legislative updates and, when available, opportunities to take action. Your engagement—whether through contacting legislators, spreading awareness, or participating in advocacy events—can make a real difference. Together, we can push for policies that enhance research, improve access to treatments, and support families navigating the challenges of rare diseases like Dravet syndrome. Our recent blog post details other ways you can receive accurate, nonpartisan information on topics that may directly affect you and your family.